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7th June 2018
A Passionate Patient/Parent Advocate, EUPATI Fellow and a reviewer with the European Medicines Agency.
Other achievements
EUPATI Expert Patient Fellow, I also involved in the research and development of drugs and clinical trials; especially as I campaigned for a drug that was denied children and young people that took part in in a 1-year clinical trial.
2. I successfully ran a Sickle cell centre for children and young people in Imo state Nigeria for 8 years. Currently about to embark another Sickle cell in Africa project.
3. Working with Researchers to ensure Patient Public Involvement is not just a tick box exercise.
5. Updated the Childhood Stroke guidelines with a team of over 30 clinicians from across the UK.
6. Working with the Royal College of Paediatrics and Child Health and The Stroke Association.
7. Partnership with NHS Blood and Transplant to encourage black people to donate blood especially as Sickle patients need it.
8. Setting up an alliance for Sickle cell in Africa - Sickle cell in Africa Patient Parent Alliance (SCAPPA)
9. Organised many seminars and workshops to support children, young people.
10. I have reached out to many people and believe that my work is just starting as there is so much that is not done for Sickle cell.
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07 Jun
7th June 2018
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