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Victoria Abbott-Fleming

Victoria Abbott-Fleming

Founder & Chair at Burning Nights CRPS Support
Stockport, United Kingdom

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Having trained as a barrister & Called to the Bar by Middle Temple in 2002 my future legal career lay ahead. Unfortunately following an accident at work in 2003 I was diagnosed with a poorly understood condition; Complex Regional Pain Syndrome (CRPS). After 3 years of trying every available treatment, all unsuccessful, my right leg was amputated above the knee. This didn't stop the pain or allodynia & hyperalgesia but stopped the extreme ulcers that proved impossible to treat.

I began getting a series of pneumonia attacks & in January 2014 during a holiday abroad I caught swine flu & 5 different strains of pneumonia in both lungs. Doctors gave me the max 5 days of ExtraCorporeal Membrane Oxygenation (ECMO) & then needed a tracheostomy. Unfortunately the CRPS spread to my left leg & was told nothing more could be done. My left leg was amputated above the knee in December 2014. I'm a bilateral above knee amputee confined to a wheelchair without the use of prosthetics.

Life has obviously changed for my husband & I but we try to get on with life as much as we can. Work has become impossible due to the medication, tormenting pain & poor sleep. However we try & do everything together.

In September 2014 I decided to turn my 14 year nightmare into a positive & I set up an evidence based website raising awareness for CRPS 'Burning Nights CRPS Support,' which is now a registered CRPS charity.

As a charity we provide awareness sessions to healthcare & legal professionals, case managers, private clinics, schools & universities to raise awareness of CRPS. We also provide an annual conference, helpline, evidence based website, social media & email support & a 24/7 online forum.

I now regularly speak at conferences, seminars, universities & hospitals with the hope of raising awareness of CRPS through my story.

Learn more about our charity Burning Nights CRPS Support & how we can support you as professionals & everyone affected by CRPS, visit: www.burningnightscrps.org

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11th March 2019

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